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Recommend epidural steroid injections. We had a vacation planned for a year for a 3 week stay in Canada so we went and I just took my discomfort and pain with me. I limp and sometimes use a cane. The pain is with me always but is worse at times and I don't know why. Anyhow, I sleep with a pillow between my legs, took flexural until they were gone, also took Vicodin only at bedtime because the Dr. did not give me enough to take as he prescribed being that we were gone for 3 weeks. So, I took Percogesic during the day for my pain and saved the Vicodin for nighttime along with my Mirapex and Klonopin.
I was diagnosed with restless leg syndrome today by a neurologist. I have been seeing this doctor recently regarding coming off Klonopin (3 mg per day) which I have been on for 9 years. I was weaned off the Klonopin over a two month period and its been the worst, most confusing and disturbing time in my life!!!!!!! Come to find out, my body became dependent on it....I had no idea it was....I was going by a previous doctor's expertise. Although it was 9 years of good sleep, I'm convinced Klonopin was not the drug for me.
Since I've been off the Klonopin I have not slept through the night....over four months now. My legs or arms will wake me out of an already restless sleep. I dread bedtime....because I know I will be woken up suddenly by my legs driving me nuts!!!! I've tried exercise....no exercise...no caffeine after 5:00 PM and it continues.
Some other things that I experience after being off the Klonopin are: numbness, unstable (loss of balance), fatigue (weakness), feeling of "pins & needles", itching, mild tremors in hands, difficulty walking (I have to think about putting one leg in front of each other at times). Are these associated with RLS or maybe because of sleep depravation?
The neurologist has prescribed Mirapex for the RLS but I'm hesitant because of the addictive experience I had with Klonopin. Needless to say, I'm very cautious about any daily, long-term medication. Is Mirapex addictive? Does it work right away or does it have to build up in the system?
Any help will be much appreciated!!!
I am a 52 yr old male and have been fighting RLS for about 4 yrs. I didn't get a formal diagnosis until about 2 months ago because my symptoms are constant, and I was told RLS is a night thing. You can see very clearly the muscles twitch. I have reluctantly started taking .375 Mirapex before bed and have been doing this for about a month. No noticeable improvement.
On the internet I purchased a book called The Answer Found. It made a reasonable case that RLS was caused by a high sodium diet. My diet was very high in sodium so I reduced my intake by about 90%. Do you know if anyone has had any success with this regime?
It has been 8 days now and again no luck with helping RLS. How long would it take to detoxify? Any comments?
The past two weeks I had some awful evenings and nights (not every day) where my ache level shot up to about 7-8. This past week I had a visit with my Neurologist and he added 300mg. of Gabapentin in addition to Requip. I am to take one at bed time in conjunction with Requip if I have a bad evening. This has improved my night sleep. Yet most evenings I continue to have an ache level of 4-5.
I am a 35 year old woman whom suffers from RLS as well as many others I have read in your columns. It all started about 6 or more months ago in my right leg (the pins and needle, shill feelings which cause a involuntary jerking effect). About 2 weeks later I was getting the same feelings in my left leg. I went to my regular doctor or family physician and discussed this with them. They gave me Ativan 1mg for this because it was only happening at night when I was trying to rest. Not go to sleep just yet.
They felt I just had a lot of stress due to my nursing job and being on my feet a lot. Well, needless to say, it only helped me go to sleep! They now keep me up, restless, tired the next day, etc.. I am now seeing a neurologist who prescribed me Mirapex .125mgs. and also Baclofen 10mgs at bedtime. This doesn't seem to change anything!
Actually I now have the same feelings, twitching not only in my legs but also in my arms and neck. I cry sometimes because I feel so strange about this. I tell my better half that I think I'm retarded! I can't control this! I suffer from depression due to this as well.
Because I feel even my neurologist whom I finally got to schedule an EEG is missing something. They tell me one minute that I have Parkinson's Disease and then that they aren't sure to the blood work they done on me to rule out PD. I am so tired of these episodes. They used to only happen at rest or evenings. Now it's anytime of day.
I am glad I am not alone in this. I just wish they would find out what exactly is going on and help me. They even happen at family events. It's embarrassing! Humiliating! Please give me some advice. Also, is RLS only found in the legs or other extremities? Thanks for listening!
I took Mirapex for about two years for moderate RLS. During this time I increasingly suffered from side effects, mostly gastric reflux. I tried Requip about a year ago but after just one night of sleeplessness went back to Mirapex.
Most recently the reflux seems to have caused me to have shortness of breath and short term memory loss. Researching medical sites on the internet indicates this can be a symptom of reflux. Do you think this is the case? Or could it be the Mirapex??
Anyway, In desperation I gave the Requip a longer trial and those problems all went away. The RLS is still under control and my stomach feels much better. After about a week I am sleeping well. I could have avoided a lot of suffering if I had given the Requip a better trial over a year ago.
David in Virginia
I'm on 600 mg of Neurontin at bedtime, I was wondering if Topamax would be as effective, considering they are both anti-epileptics? With the added benefit of possible weight loss?
Please tell me, what is the difference between RLS and "only" PLMD. I have PLMD, (diagnosed in a sleep labor), but I don't have jerking legs. And so I am not sure, if my sleep problem comes really from the PLMD.
My legs hurt somewhat most the time but I get and do something and the RLS is not too bad. I am going on a fifteen day cruse to Hawaii in September. I have heard that most sea sick pill make RLS worse. Do you have any recommendation.
Thank You for any recommendation,
Could these two medicines in combination be causing the pain in the stroke side? Our doctor seemed to think that the two are the problem. He also takes Darvocet for pain. Thank you in advance for your attention to my question.
I have tried Mirapex alone, Mirapex and Vicodin, Tylenol 3s,
I'm trying Neurontin. I have started with 100mg and I didn't sleep well at
all last night. The RLS was bad and I actually woke up after a couple of
hours sleep. I did get back to sleep but I seemed to doze rather than sleep
deeply. The twitching (PLMD) was evident going to bed and in the morning.
The RLS was hard to manage all day; and I was tired as well.
I'm wondering about increasing the dose to 300mg over the next 2 nights and just tough it out. Or is this reaction a taste of what will happen in the future. I am normally tired, but I seem to be comfortable with that. I would like to be less tired, but it seems that the meds that I have tried, do not have the desired effect. Do RLS meds need to be broken in like a shoe needs to be broken in or is the med supposed to provide an immediate positive response?
Lucy Ontario, Canada
What a great site! I have learned a great deal.
I have 2 neurologists, 1 for sleep the other for MS. I have had mild MS for over 10 years and RLS for longer. RLS is by far much worse for me than MS. The sleep study diagnosed me with severe RLS., I moved my legs 79 times an hour on average but didn't feel it due to 2 mg clonazepam I had been taking for 5 years. My ferritin also tends to be around 25 on a scale where anything less than 44 is considered deficient.
We also know that my RLS wouldn't be that bad if I wasn't taking Ditropan. It is a little frustrating that I need to take meds because of another med! My RLS is so bad that when I start a family next year, I will be staying on 1 med during pregnancy. Motherisk has told me that Clonazepam is the only one that causes defects. Neurontin and Mirapex so far have been safe by what they have seen.
I cannot sleep, go to movies, have even one glass of wine.............the list goes on and I see I am not alone when reading everyone's letters! We are now at a crossroads in treatment. I have tried Neurontin, it caused my hands to shake.....I now only take 300mg at night for this reason. I have added Mirapex .125 2x's daily. I would like to take .5 or 1 mg at night as my neurologist prescribed but the nausea is terrible.
I am also getting headaches, is this normal. I am a little scared that I also might hallucinate.....how common is this with Mirapex? Regarding Mirapex, should I add .125 daily or weekly? If it has the potential for insomnia can I take it during the day and still have a good response at night.
Is it OK to take Neurontin with Mirapex together long term? I am trying to get off of Clonazepam due to it's addictive nature but that last .5mg is hard to do! Requip isn't in Canada yet or I would try that.
Thank-you for your help and expertise!
I seem to be experiencing some augmentation with the dosage of Mirapex which I have increased to four 0.125 a day. I have heard that some alternate Mirapex in some fashion with Requip. What suggestions might you have as to how to do that? How much Requip would I need to replace the Mirapex and could I change suddenly from one to the other? I also take Prempro and Hydrochlorate, Avapro and Atenolol for blood pressure. I am a bit unsteady on my feet sometimes.
I read that these are side effects of these medications. Also when I awaken in the middle of the night I often take a Diazepam. Is that a mistake to do that too often?
I read someone had used elastic stockings with magnets, would this help on the long flight in general?
This stenosis takes many years to get to this point and in doing so, could have been been some of the cause of the RLS to begin with. Take the stenosis away, probably only temporary, and the RLS could go with it. I have never had pain with my RLS. Just the need for movement all the time and difficulty sleeping.
After seeing three neurologist in a large metropolitan area (I live in a very isolated, rural area,) it was suggested that I take Mirapex (which I did not,) clonazepam (only) or a combination of clonazepam & Permax. I finally went with the combination of clonazepam & Permax.
Am now experiencing some limb stiffening, muscle cramping & right hand shaking. Also, some mental confusion &, while not hallucinations, in the typical sense (as in "seeing or hearing" unreal objects or sounds,) none the less, feel "not normal perception."
Very truly yours,
The combination of Tramadol with Dopergin is wonderful: First it helps against RLS, and because You need less Pills it second is nice to Your money and third to your body. And when You do this by using a drink of an effervescent tablet of Tramadol and the Dopamin-Agonist-Tablet, YouŽll learn fast: You've got the chance to distribute this over the whole day corresponding to Your very individual needs!
My best wishes to everybody concerned with ...
Can you tell me how long I should stay at a dose of Mirapex before
increasing. A pharmacist told me that it will take up to 2 weeks to see the
full effects of Mirapex.............he knows it is for RLS.
I now take .25mg at night for 10 days now. I started at .125. The nausea is a real bother, sometimes waking me up at night. Does this eventually go away?
I have had RLS since I was a teenager and it has driven me out of my mind. For a time the herb Butchers Broom helped, but what really solved the problem was when my doctor gave me Vicodin for headaches. I found it absolutely amazing and am now relieved to read on numerous sites that this is a regular treatment for RLS.
My problem is now that I'm pregnant I really feel awful unless I take Ultram but I just read that when taken with Zoloft it has been known to cause seizures. I have noticed I've been jerking at night, I just thought it was stress related. I'm so afraid of hurting my baby but in the meantime I'm going crazy with RLS.
I need to the lesser of the two evils. Ultram and Zoloft during pregnancy or Tylenol 3 and Zoloft during pregnancy. Please help and give me an honest answer. I know that I should take nothing but that isn't an option.
I read the letter and response from the person who described the relief of their symptoms by magnet therapy. I have had the syndrome for several years and last year, just on a whim, I decided to try magnets. For no reason at all I placed three magnets around my knee and the relief was instant. The RLS sensations in my calf stopped immediately.
Until recently, when I started having symptoms at night, my RLS has all occurred during the daytime, when sitting at meetings, as a passenger in cars, planes, etc. Now, before a long meeting or flight, I place the magnets and often have no symptoms even start. If I forget the magnets, I use them when the symptoms start and 90% of the time get relief within minutes. I carry the magnets with me at all times.
Someone once told me - If the magnets aren't working, you don't have them in the right spot. I would suggest to those who have tried them to try them in different spots, not just where you are feeling the sensation. That may not be where the actual source of the feeling is. I put them around my knees for the sensation in my calf and it worked!
One thing I would say about magnets - weak, frig type magnets are not what I use. I use strong, medical strength magnets (Magna-Bloc).
Dundas, Ontario, Canada
I need advice: About 6 months ago my doctor put me on Mirapex. It worked well until about a month ago when I started getting RLS during the day, about 5:00 when otherwise I only got it at bedtime. Then one night I took it as usual and my RLS went out of control, they had to give me valium to calm me down.
My doctor told me not to take is any more and put me on Sinemet, even though I knew is was famous for causing the same kind of problem. Now I am feeling fine on 2 25/100 tablets at night about 12:00. No feelings earlier in the day any more.
Now one of the other RLS sufferers was E-Mailing me that Sinemet is worse and I will be in trouble, to go back to the Mirapex as she thinks it could not have caused my problem. I just don't know what to do.
You told me not to use Sinemet, but it is the only med that works for me. I understand you recommend Requip, but it does not work for me at all. Neither does Permax. Klonopin worked for about 6 months and then nothing. Neurontin did nothing for me at all. What else can I do.
I have only been on Sinemet about 10 days, two 25/100 tablets at 12:00 midnight and I am sleeping all night. I haven't had any RLS since I went on it. I know this may not continue, but maybe if I keep it at low doses it will last a while. If augmentation happens is it possible that I could then go back to Mirapex and try again?
I also had another side effect from Mirapex. My feet began feeling numb and burning, and when I stopped the Mirapex all of that stopped. I do not have a problem with my back but had an X-ray anyway. Nothing. The Mirapex did that to me I am sure.
Where do I go from here?
Hello. Can you tell me what, if any, effect combining a bedtime dose of .375 mg. Mirapex with Ambien might have. I have the RLS usually under control although I do wake up in the night with mild RLS sometimes. My main problem for many months now is insomnia.
I am lucky if I get 5 hours sleep a night, usually more like 3 or 4, and perhaps a bit of dozing. It is as you can guess having a harmful effect on my life. I am really fatigued a lot, and often cannot rest or nap well in the daytime.
Any ideas? I have tried Neurontin along with the Mirapex, and it makes me totally spaced out the next day, even at half the (300 mg) does. Also Klonopin: awful!
Thanks in advance for any help
you can give me,
I suffered through night time and sitting RLS for 35 years until I discovered that RLS occurred on the days I drank caffeine or alcohol. I noticed that one contributor listed orgasm to relieve the symptoms, and I can vouch for that.
I am writing from Germany and my question is whether I can take without being anxious every night one pill of 10 mg Zolpidem (Ambien) or if I should take a holiday. The enclosed instructions here in Germany are warning of addiction if you take the pills for longer than 2 3 weeks. How long can I take them ?
Thank you In advance for your answer.
Maybe you can illuminate a problem I'm having with exhaustion during
exercise, which might be associated with Mirapex. I'm a 48 year-old woman,
and have had PLMD symptoms (while awake) for many years. A couple of years
ago, I was put on Mirapex by a neurologist, and it has been extremely
effective at suppressing the leg movements and greatly improving my sleep.
However, I've had to gradually increase the dose from .125 to the .5 dose I
am currently taking as the lower doses have become less effective. I've
had few adverse symptoms though.
Concurrently this last couple of years, I've experienced a progressive
decline in my exercise stamina. I used to run 20 - 25 miles weekly, but
began to have trouble maintaining that level of exertion. I've had to
modify both the intensity and duration of my workouts over time.
Currently, I exercise (running or gym workouts) every other day, and
tolerate that as long as I take periodic rest breaks. I do seem to have
plenty of energy for my normal daytime activities though, when I get enough
sleep. I have had some increased insomnia the last few months. Some is
self-induced as I haven't been as good about regular bedtimes; some is due
to a change in my husband's sleep schedule. I'm sure the sleep issues
don't help, but I've had bouts of insomnia in the past that didn't affect
my running. Since I'm pretty dedicated to maintaining my physical fitness,
this whole thing has been very discouraging.
My regular physician has ruled out exercise-induced asthma, heart disease
and other problems with a battery of medical tests. All my test results
have been normal. The cardiologist who administered my treadmill test
suggested I could be suffering overtraining syndrome, but my physician is
skeptical. My own theory was that a series of chronic sinus infections was
the culprit. I pushed my doctor to keep me on antibiotics for longer
periods to see if the exercise problems went away, but that was not really
helpful. (And I'm still getting recurring sinus infections every few
My doctor thinks that the Mirapex may be causing the exercise exhaustion.
Have you heard of this side-effect with Mirapex, especially at higher
doses? I know there was mention in the Mirapex clinical studies of daytime
fatigue in some patients. If this might be causing my symptoms, are there
any other drugs that might relieve the exhaustion while still allowing me
to stay on the Mirapex (like Symmetrel)?
My physician would like me to take a Mirapex holiday, to see if it makes a
difference. I've tried a couple of months ago to switch to Sinemet, but by
the second night, the rebound PLMD symptoms were so bad that I went back on
the Mirapex. I was not impressed by Sinemet. Should I give it another
chance, for a longer period? Or should I ask to try another dopamine
agonist like Requip? Also, would it be a good idea to ask for a
benzodiazepine for a limited period while I try to switch meds? Having a
fall-back drug would probably relieve my anxiety about going off Mirapex
and facing the PLMD again. If I did take a drug holiday from Mirapex, how
long would I have to be off before I could resume it again?
Your advice on this would be much appreciated.
A Reply from Rita G.
Concurrently this last couple of years, I've experienced a progressive decline in my exercise stamina. I used to run 20 - 25 miles weekly, but began to have trouble maintaining that level of exertion. I've had to modify both the intensity and duration of my workouts over time. Currently, I exercise (running or gym workouts) every other day, and tolerate that as long as I take periodic rest breaks. I do seem to have plenty of energy for my normal daytime activities though, when I get enough sleep. I have had some increased insomnia the last few months. Some is self-induced as I haven't been as good about regular bedtimes; some is due to a change in my husband's sleep schedule. I'm sure the sleep issues don't help, but I've had bouts of insomnia in the past that didn't affect my running. Since I'm pretty dedicated to maintaining my physical fitness, this whole thing has been very discouraging.
My regular physician has ruled out exercise-induced asthma, heart disease and other problems with a battery of medical tests. All my test results have been normal. The cardiologist who administered my treadmill test suggested I could be suffering overtraining syndrome, but my physician is skeptical. My own theory was that a series of chronic sinus infections was the culprit. I pushed my doctor to keep me on antibiotics for longer periods to see if the exercise problems went away, but that was not really helpful. (And I'm still getting recurring sinus infections every few months.)
My doctor thinks that the Mirapex may be causing the exercise exhaustion. Have you heard of this side-effect with Mirapex, especially at higher doses? I know there was mention in the Mirapex clinical studies of daytime fatigue in some patients. If this might be causing my symptoms, are there any other drugs that might relieve the exhaustion while still allowing me to stay on the Mirapex (like Symmetrel)?
My physician would like me to take a Mirapex holiday, to see if it makes a difference. I've tried a couple of months ago to switch to Sinemet, but by the second night, the rebound PLMD symptoms were so bad that I went back on the Mirapex. I was not impressed by Sinemet. Should I give it another chance, for a longer period? Or should I ask to try another dopamine agonist like Requip? Also, would it be a good idea to ask for a benzodiazepine for a limited period while I try to switch meds? Having a fall-back drug would probably relieve my anxiety about going off Mirapex and facing the PLMD again. If I did take a drug holiday from Mirapex, how long would I have to be off before I could resume it again?
Your advice on this would be much appreciated.
A Reply from Rita G.
Thanks for your quick response, but I do need a clarification. What do you mean about stopping Mirapex "with great care"? Do you mean decrease the dose gradually? Can I take another drug concurrently with Mirapex, decreasing one and increasing the other until I'm on the new one exclusively. Or do I ask for an limited prescription of an opiate or benzodiazepine to help with the transition?
Also, is the rebound effect permanent, or does it decrease with time? Sorry for the further questions, but I always like to know my options when it comes to medical issues.
And of course, I've thought of one more question. Have you heard of Mirapex affecting sexual responsiveness?
Reflux is listed as an uncommon side effect but the GI doc thinks it may be relaxing the sphincter, allowing the acid to come back up. Is this a sound possibility? Has it happened to anyone else? Also, how come it is not recommended to go "cold turkey" when getting of this drug. Is the danger only to Parkinson's disease patients?
Does Permax or other RLS drug at the dosages most commonly used cause any increase in anxiety or depression? And what about mood swings? I have noticed I am very emotionally sensitive especially with anxiety.
What are the long term effects of taking these drugs? Do these drugs actually create or worsen the condition? I wish there was a drug that had a short half life that reduced anxiety while eliminating the RLS symptoms and just allowed good sleep.
Thanks for your help, this condition is enough to push
you right to the edge on bad nights,
I am a 39 year old male who sometimes suffer from RLS. When it does hit me, it appears to last about a week and then it will disappear for months. When this happens, I find myself searching the Internet looking for means to get rid of these symptoms. I've tried hot baths and Motrin and Tylenol with about 20% success rate. It's those other times that really frustrate me. Sometimes at the point of actually hitting my legs because I know that they're keeping me from my much needed sleep.
Now here's the real complication. I'm a air traffic controller who basically can't take many prescription drugs and still work. Are there any other treatments or natural supplements that I can take when this flares up? I've looked at the food list and I'm not consuming any of the items that you list.
Is this a side effect? I have been on Sinemet and Permax in the past with either loss of effectiveness or side effects.
I have figured out that I am suffering from RLS. I have read that its onset may be in conjunction w/a damaged nerve. I suffered a groin pull that became increasingly worse because I ignored it. This worsening of my groin area seems to coincide w/the onset of RLS symptoms.
I don't jerk or shake my legs but, I do suffer an incredible uncomfortable feeling in my calves, knees and quads in both legs. This occurs mostly at night though I feel lesser symptoms throughout the day. The pain in the evening also corresponds to how active I have been, how long I have walked for periods of time during the day. 15 minutes walking around Target was a killer. I had to sit down.
I'm also suffering from some pain, right in the middle of my knee. A physical therapist said this might be tendonitis due to the groin pull. Never had any issues with my knees. I'm an avid basketball player at the age of 49.
If my RLS may be due to a damaged nerve, why is it occurring in both legs? What minimum iron supplement can I try to see if iron may help alleviate RLS symptoms.
Thanks you for your help.
Thank you in advance for your wonderful advice. I read this web site regularly and have received so much useful information .
I have had RLS for over 25 years and have been on almost all RLS drugs - some better than others. Right now I am on Permax .05 of which I take 7 tablets for my 24/7 RLS. I have read about the side affects of Permax and am going back to Mirapex after being off of it for l year. In your opinion, what is the best way to switch from Permax to Mirapex with the least possible problem. ?
Rosemarie (65) Canada
I have read the RLS input on your web site, very helpful to me. I will share it with my family and doctor. I have some questions on my sensations I feel.
I get crawling ants and itchy feeling all over, are more pronounced in the shoulder blade area of the back, hands, face and feet. The shoulder bladed on the left side is worst with a deep burning internal itch. My lower legs and thigh get a feeling like a tingle at rest.
Sometimes there is a feeling of numbness and at times pins and needles. This is felt mostly in the feet, legs and hands. Twitches and jerks in legs and arms.
Cramps in feet, ankles (turning up and out or turning in), toes (big toe pulls up), the upper inner thigh and calf's. I get this when sitting or laying down. Mostly in the feet at the big toe. I get most of the cramps 3:00-6:00 AM after I have been asleep. They do not go away with stretching. I have to use ice to relax the muscle and tendon.
At times I have pain in the shinbone area for a few days after cramping. Once I start getting cramps I get them 3 to 4 times, close together. I have more trouble with the left side.
I'm taking Neurontin 1200-1500 mg and using Ambien 5-10 mg to help me get to sleep. The doctor had me try Mirapex .125 mg, but I had chest pain and breathing problems. So the doctor wants me to use Permax .05 mg. This drug has a warning about valvular heart disease. My Mother has heart problems and hypertension with breathing. Would Requip be a better choice?
I took Sinemet 10-100 for a year then had augmentation and stopped taking the drug. The doctor had me try Hydroxyzine HCL 25 mg at bedtime for itching. The doctor said that the itching is not part of RLS. I took this med and it made my ants and twitches worst.
I August 2002 I had my first child. From the beginning of the pregnancy I had trouble with restless legs. (It runs in my family and I had it occasionally during long airplane travels even before getting pregnant.) The trouble kept increasing until when I had still three month to go I broke down completely because at that point I never slept for longer than 15 to 20 minutes at a time. (Earlier on swimming in the evening had helped a bit.) My home doctor said there was nothing that could be done, and when I tried to make an appointment with a neurologist I was told the waiting list would take at least 2 months.
My complaints would usually start at about 5 in the afternoon. I would have to go to the toilet a few times, as if my bowels were the first to go crazy, and after that I would have RLS until about 11 the next morning. On good nights I would manage to stay relatively calm and stand with a pillow leaning against the wall waiting for the horror to end (weight on my legs was the only thing that kept the RLS away). On other nights I would cry, kick my leg until I was completely exhausted and covered in sweat. The endless shacking and kicking often made me fear the baby would be born to soon. My arms would also join in, but the symptoms were always on one side of my body. Usually left, but that could suddenly switch to the other side.
I then did something that I find so hard to accept myself that I don't need you to criticize me on it (I am doing that myself badly enough): I read on the internet that smoking cannabis would get rid of the RLS. It was true: inhaling two times would get rid of the symptoms for 1.5 to 2 hours.
I smoked as little as I possibly could but I felt this kind of brief relief at night saved me and thinking back on how bad I was doing before I discovered this remedy I find it hard to believe that I would have been able to carry on the pregnancy until the end without it. My son is healthy, concentrates well, is cheerful, develops well so far, but...you will no doubt understand how I feel about what I did.
After I gave birth the RLS disappeared for about 4 months, and then reappeared. First strangely enough only when I was feeding my baby at night. This makes me think it has something to do with hormone levels. (During the day breastfeeding would not cause RLS.) Later I had trouble almost every night. I finally had an appointment with the neurologist who gave me Rivotril (by that time I had stopped breastfeeding) which DID NOTHING FOR ME! When I got back to him he told me that if Rivotril did not help, nothing would. He advised me to avoid stress and break through the negative sleeping cycle (as he called it) on my own. He also gave me a kind of antidepressant called amitriptyline which if anything made me worse.
I gave up my part time job and my husband took care of our baby every morning when I was still too exhausted to do anything. I went from 64 kilo's to 53 because I just couldn't eat enough. (I lost my appetite completely probably because I was so tired.) Fortunately there is a relatively happy ending: my home doctor gave me Permax, which so far helps perfectly. I sleep until morning, have started eating properly again, am finishing my PhD etc. etc. It is just that I would dearly love to have another child but I am too scared. I just cannot go through that horror again. My questions (finally) are many:
Are there different causes for RLS? Does RLS during pregnancy have different causes than, say, RLS in men? Why do cannabis and dopamine-related medicine like Permax help me when Rivotril did nothing. Is this really so unusual? (And a related question: Is my neurologist an idiot?)
The fact that swimming helped me initially makes me think it has to do with blood circulation. The breastfeeding thing would point to hormones (the symptoms also diminish with the start of my period). I have read that ferritin levels may be involved: Is it true that taking iron supplements may help RLS sufferers.
But most importantly: Is there any way that women like me can be helped during pregnancy with safe medicines?
My question concerns the Ambien. I always had wonderful results with the medication until last year. After my third pregnancy and weaning my son, I was glad to be able to once again take the Ambien. The problem is it doesn't work for me anymore. I've read that evidence doesn't support a tolerance theory, but yet that seems to be the case for me.
The only other thing I can think it may be related to is unrelated shoulder pain I've been experiencing for the past year and a half. Could that explain why the Ambien isn't working anymore? As the years go past the RLS is getting worse and I will have to begin some maintenance meds I think before long. I just don't understand why the Ambien does not work anymore. I'm already on the 10mg maximum dosage.
Thank you for your time,
I took Requip for two years and found that it increased my appetite and I
gained 30 lbs over a two-year period. I changed to Mirapex, 0.25 mg. twice
a day and one 0.5 mg. clonazepam at bedtime, I found it very helpful for
my restless legs and does not affect my appetite. However, recent blood
tests have shown that my thyroid level is hyper. I have never had any
problems with my thyroid. I was wondering if either the Requip or the
Mirapex could have something to do with it.
Can you answer my question? Thank you very much,
24-hr. RLS sufferer.
I have been successfully using Mirapex for about 4 years now, for RLS, starting from .125 mg. up to at present ( and just recently increasing) .5 mg, taken in the evening. Lately, for maybe 4 or 5 months, I have been having trouble sleeping. Drugs prescribed for that problem have had bad side effects, such as "hangover" effect, etc.
I have tried Neurontin (even at a small dose, I felt wretched the next day, spaced out, dizzy, like a zombie!), Klonopin (horrible!) , hydrocodone, (strong mood swings after the drug wore off). I am a fairly normal person, not one given to mood swings, etc, also not into taking so many drugs. At this point, I hardly ever get more than 3 or 4 hours sleep, and tired all the time.
It is interfering, as you well know, with every aspect of my life. I got a prescription from my neurologist for Ambien, it works well, I get at least 6 hours of sleep with it, but I am worried about taking it more than once a week or so, maybe twice a week, because I have read that tolerance can become a problem. I am desperate to sleep. Can you help?
Thank you for providing this service,
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